Saturday, 13 October 2012

"The Forever Fix" Explains Gene Therapy

By Saleem Rana


Monday, October 1st, 2012

Interview By Allen Cardoza

Allen Cardoza, the founder of the Answers for the Family Blog, invited writer Ricki Lewis to this week's L.A. Talk Radio for a book review of her most recent publication, "The Forever Fix." This is the very first book of its kind to expose the inside story of gene therapy. The narrative non-fiction publication is a description of how this little-known form of therapy works and the science behind it.

Ricki Lewis

Ricki grew in New York City, and she got her PhD in genetics from Indiana University in 1980 by working with mutant flies that had legs growing out of their heads. After creating numerous books for students and writing thousands of magazine articles, she has now authored her first narrative nonfiction book, "The Forever Fix: Gene Therapy and the Boy Who Saved It." This is the true story of a resurrected biotechnology that gave the gift of sight to a youthful boy. In an engaging, novel-like theme, Ricki chronicles the ups and downs of gene therapeutic procedures through the eyes of the youngsters, parents, specialists, and even the once-blind sheepdogs that have actually experienced it.

Ricki is a genetic counselor in Schenectady, NY and an instructor for the Genethics online masters program at the Alden March Bioethics Institute of Albany Medical College. In her spare time, she works as a volunteer for Community Hospice in Schenectady.

The Revolution in Gene Therapy

Allen began the interview by asking Ricki to share with the listeners the fascinating story of Corey Haas. Ricki explained that in 2008, Corey Haas, then 8-years-old, had successfully undergone gene therapy to cure his hereditary blindness. His restored vision marked a breakthrough in the recognition of the immense value of gene therapy. Nine years earlier, the biotechnology had been sidelined when an 18-year-old died in a similar experiment in the very same Philadelphia hospital.

In the course of the interview, Ricki discussed genetic disease, genetic testing, and genetic counseling, in addition to gene therapy, unusual diseases, and new discoveries in stem cell research. She also talked about how medical researchers learned from each trial to get one step closer to figuring out what worked in gene therapy. She decided to call her book the "Forever Fix," since gene therapy repairs all medical issues at their genetic origin. After a single treatment, patients, mainly youngsters with unusual genetic diseases, do not need further surgical procedures or treatments.




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